Archive for the ‘Ostomy’ Category

ONE DAY OFF

happiness

By Leighann Sturgin
I’d like to have One Day Off. One day that I didn’t have to think about the crapsack on my belly. One day I didn’t hear the bag crinkle or my stoma didn’t make weird, loud, embarrassing noises. One day I’m not worried about the crapsack leaking. One day I didn’t need to know where every bathroom along my path was located. I just want one day off from my skin hurting all the time. I believe …

Happy New Year

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By Leighann Sturgin

Happy New Year! I’m so thankful to see 2016. The holidays were a little tough for me this year.

On 11/25/15 (the day before Thanksgiving) I had stoma revision surgery. I lost another 12” of small bowel leaving me with a total of 120 cm of intestine. I had a very retracted stoma making it impossible to get a ostomy wafer to seal. The skin around my “innie” stoma looked like hamburger. It hurt…all the time. After …

I’m Stuck

Leighann

I’m stuck…I’m stuck between a world of cancer and wellness. I’m very grateful to be cancer-free but I’m far from healthy. It’s a lonely place. Sometimes I find myself jealous, even resentful of people who beat cancer and carry on with “normal” life. Then I’m quickly reminded of the many friends who have finished the race and are now resting then I feel guilty. I do not envy my friends who are on chemo indefinitely, or the ones who’ve run …

Call on Congress 2015

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One day in 2006, while I was on my way to see my oncologist, the Patient Navigator at my cancer center stopped me in the hall and asked me if I’d be interested in going to Washington, DC to talk to Congress about colon cancer with a group of strangers who call themselves Fight CRC. I pictured someone testifying before ALL of Congress, like you see on C-SPAN. And thoughts of traveling with TPN and all the medical supplies that …

Meet Ms. October | Staci Wills

Now although she does have striking resemblance to her, October’s model is not Barbara Eden from I Dream of Jeannie. It’s Staci Wills, a brave rectal cancer survivor from Canfield, OH. Read on to learn more about this funny, charming survivor we’re proud to call one of our own at The Colon Club.

The BASICS

Staci-wills-stage-3-rectal-cancerName: Staci Wills

Diagnosis: Stage III rectal cancer in July 2009.

Age at Diagnosis: 32

 

ON SURVIVING CANCER:

Where were you when

Musings on my patient/caregiver relationship

by Staci Wills

From the day I was diagnosed until the day I rang the closing bell on chemo, I tried my best to avoid hearing the statistics, small percentages, possible side effects associated with my cancer, but I also avoided other colorectal cancer patients.  That sounds harsh, but I didn’t want to hear what could, might, or would happen to me.  I didn’t want to hear what the statistics said about Stage III rectal cancer.  I didn’t want to …

Meet Miss August | Melissa Bates

Woo hoo! We are so excited to introduce you to this beautiful young woman, Miss August! Not only is she so cuper cute, but she’s also got one of the biggest hearts you’ll find. Read on to learn a little bit more about Miss August, Melissa Bates.

Melissa-bates-colon-cancer-survivor

The BASICS about MELISSA BATES

Name: Melissa Bates

Diagnosis: Stage III rectal cancer on October 2, 2008

Age at Diagnosis: 20

 

ON SURVIVING CANCER:

Where were you when you found out you

Cancerversary – When Is It?

by Staci Wills

This week marks my three-year cancerversary – I think? Do you celebrate your cancerversary based on the day you were diagnosed or the day you finished chemo? Three years, in relation to my age (35), is a very short time. Three years goes by so quickly. Major life changes happen in just three years. I remember that when I was 10, I thought I would never be a teenager. At 13, I thought 16 would never arrive. …

Finding My Voice – Part 1 of 3

Part 1 of 3 – Becoming an Advocate

It was fall in the Pacific Northwest, my absolute favorite time of year. Fall of 2007 was an especially bright one; lots of sunshine, vibrant fall colors and that cool crispness in the air. I got my kids safely on the school bus and headed down to CVS Pharmacy in Vancouver to run an errand I’d been particularly dreading.

As I drove south on 503 there were a dozen or so places …

Celebrating Success — Another Milestone Achieved!

by Staci Wills

Well, I did it! I have been irrigating my colostomy for several months, and for the most part my bowels are pretty regular. Like I said a few days ago, I have never had the courage to wear only a stoma cap outside the walls of my house, but yesterday I did it, and I plan to do it again today! Wearing the stoma cap meant that I could wear a regular bathing suit without the “granny …

Irrigation: It’s Not Just For Crops Anymore!

by Staci Wills

 

This blog won’t always be about ostomies, but since Belle opened the door, here is another spin on life as an ostomate.

At 32, I was diagnosed with Stage III rectal cancer. Because of how low in the rectum my tumor was located, I had no other option but to have a colostomy. Not having any other options, I quickly accepted that this would be my new way of life, but accepting something and embracing it …

The Colostomy Conundrum – Part 3

by Belle Piazza

Read Part 1

Read Part 2

February 14, 2011 was by far, one of the best days of my entire life.  Not because it was Valentines Day but because that was the day I received a phone call from Erika Kratzer from The Colon Club, informing me that I had been selected as one of the 2012 Colondar Models.  I was beside myself with joy.  I couldn’t believe my luck.   If I had a bucket list, this …

The Colostomy Conundrum | Part 2

By Belle Piazza

Read Part 1 of the Colostomy Conundrum

I’ve never been one to back away from a challenge.  I may not be jumping out of an airplane with a flimsy fabric parachute on my back, but suffice it to say, I’m not a wimp.  To reverse or not to reverse – that was the question.   I compared the pros and cons of having an ostomy vs. not having one.  But in all honesty, for anyone facing this decision, …

The Colostomy Conundrum | Part 1 of 3

by Belle Piazza

I honestly can’t say that it came as a complete surprise to me as I lay there in my hospital bed in my post colonoscopy haze to hear the word “cancer”.  I had to hear it several times as the anesthesia made me pretty loopy; but each time the word was spoken I just sort of took it in.  Not thrilled of course, but not shocked.  My father died of colon cancer at the age of 67.  …