Blog

ONE DAY OFF

happiness

By Leighann Sturgin
I’d like to have One Day Off. One day that I didn’t have to think about the crapsack on my belly. One day I didn’t hear the bag crinkle or my stoma didn’t make weird, loud, embarrassing noises. One day I’m not worried about the crapsack leaking. One day I didn’t need to know where every bathroom along my path was located. I just want one day off from my skin hurting all the time. I believe …

Happy New Year

sturgin-family-2015-jamielynettephotography-57

By Leighann Sturgin

Happy New Year! I’m so thankful to see 2016. The holidays were a little tough for me this year.

On 11/25/15 (the day before Thanksgiving) I had stoma revision surgery. I lost another 12” of small bowel leaving me with a total of 120 cm of intestine. I had a very retracted stoma making it impossible to get a ostomy wafer to seal. The skin around my “innie” stoma looked like hamburger. It hurt…all the time. After …

Perspective on Patience & Life

lauren miller blog

By Lauren Miller

On a recent flight back to Chicago, I had the pleasure of sitting next an 18-year-old male college student. It was an early morning flight, and we boarded the plane in record time. Due to this, our pilot announced we would have an early arrival. The young man said allowed, “Yes! I have a connecting flight and I was worried I’d miss it.” This gave him an immediate sense of relief, and we began talking about what …

Hope, Strength and Inspiration

Lauren Miller

By 2016 Colondar Model Lauren Miller

 

I recently found out my coworker is having preventive surgery for breast cancer. She is a 5-year

breast cancer survivor and had the genetic testing done. It was confirmed that she has BRCA-1

gene. Because of this, she is also getting a partial hysterectomy in December to remove her

fallopian tubes. She will then get double mastectomy in March. What struck me as surreal was

that she is 52 years old, and came

I’m Stuck

Leighann

I’m stuck…I’m stuck between a world of cancer and wellness. I’m very grateful to be cancer-free but I’m far from healthy. It’s a lonely place. Sometimes I find myself jealous, even resentful of people who beat cancer and carry on with “normal” life. Then I’m quickly reminded of the many friends who have finished the race and are now resting then I feel guilty. I do not envy my friends who are on chemo indefinitely, or the ones who’ve run …

2016 Colon Camp

2016 colondar-family

By 2016 Colondar Model Phuong Gallagher

 

Eight years ago today, I was diagnosed with rectal cancer. Although the cancer itself was not a blessing, some of the things that it brought me absolutely are. It has given me the experience and with it the wisdom to help those that are lost somewhere in the journey through their own diagnosis. It has also taken me through my own journey where I have met precious friends along the way. Too often …

Health Insurance Q&A

By Andrew Elder

After my last post, The Best Defense is Good Insurance, I received an email from a recently diagnosed gentleman (we’ll call him “Mike”) through LinkedIN with several excellent follow-up questions. I replied, but it seemed that his connection in LinkedIN wasn’t working. So to be sure Mike receives my response, and to hopefully answer some questions others of you may have had, I’m including his questions and my answers below.

Bear in mind, I’m giving my …

Call on Congress 2015

E_i6q_IQ3n-hcgJ5lnMTiO72n0eoNBTgWNGZ_LlMBzc=.F4

One day in 2006, while I was on my way to see my oncologist, the Patient Navigator at my cancer center stopped me in the hall and asked me if I’d be interested in going to Washington, DC to talk to Congress about colon cancer with a group of strangers who call themselves Fight CRC. I pictured someone testifying before ALL of Congress, like you see on C-SPAN. And thoughts of traveling with TPN and all the medical supplies that …

Last Moments with My Best Friend

Belle and Maria

By Maria Williams

I lost my best friend a short time ago. As I sit here re-reading through the e-mail she sent me regarding her final wishes I find something I had either forgotten or suppressed. She asked, with great clarity, that I write about her final experience, her death. This is something Belle and I often spoke of in her final weeks. We discussed how there are detailed accounts, opinions and specifics about all other aspects of life: birth, …

The Last Blog

551511_10203433359575433_2672365393710571435_n

By Belle Piazza

Over the years on The Colon Club, I have read about knights in shining armor. Husbands whose wives they could not do without. Husbands who meet their every need, every moment of every day. And it angers me because I wasn’t lucky enough to have landed such perfection, but this isn’t a vent blog. One of my rules has always been a blog cannot be just a vent, it has to have a purpose, and I will …